Imagine being told your child has a disease such as cancer.
Now imagine your childs doctors ( and everyone else) not knowing what cancer was - or how to fight it and treat your child and family.
That's what it is like for Alexander Disease families.
Alexander Disease is a progressive neuro-degenerative disease that slowly destroys the white matter in the brain.Mental and physical function is slowly destroyed until the person, usually children, can no longer care for themselves - or eat or breathe on their own. There is no cure. It is fatal. Only 4 to 5 hundred people have been diagnosed with it since it was discovered in 1949.
Now imagine your childs doctors ( and everyone else) not knowing what cancer was - or how to fight it and treat your child and family.
That's what it is like for Alexander Disease families.
Alexander Disease is a progressive neuro-degenerative disease that slowly destroys the white matter in the brain.Mental and physical function is slowly destroyed until the person, usually children, can no longer care for themselves - or eat or breathe on their own. There is no cure. It is fatal. Only 4 to 5 hundred people have been diagnosed with it since it was discovered in 1949.
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| Brittany - Somersworth High School Prom '09 |
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| Isabella visiting her mom at Maine Medical Center - Nov '10 |
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| Aiden, smiling for his grammy and the camera -May '11 |
Brittany LaRoche, a 20 year old girl from Somersworth, NH has Juvenile Onset Alexander Disease. Her family is struggling on one income to keep their family afloat while Brittany's mom stays home to care for Brittany and Brittany's two young children. This prevents not only some basic needs from being met, but better healthcare to be sought for her ongoing care. Also since Brittany was diagnosed at a young age (14) with an Unknown Leukodystrophy ( AD is one of MANY Leukodystrophies ), and then at age 17 with Alexander Disease, she is now not only unable to work, but unable to acquire life insurance to help her two beautiful babies after she is no longer here. There are also financial barriers involved with the process of Brittany's mom obtaining Adult Guardianship of her and guardianship of Brittany's children so that someone is able to make medical and legal decisions for them, should Brittany's health deteriorate rapidly.
Please join us at a FLAPJACK FUNDRAISER at our local Dover, NH Applebee's to begin the daunting task of assisting Brittany's family!
You and everyone you know are welcome to attend. Please feel free to forward this page or the facebook event page to everyone you know!
Saturday July 16th at 8-10am
$5.00 per person
Guests are also welcome to come the day of the event and purchase tickets at the door!
RSVP on the Facebook page and show your support!
Raffles and a bake sale are planned!
Anyone with information, ideas, suggestions and personal contacts at local businesses that may want to be involved with a donation for the fundraiser ( monetary or raffle item ) are welcome and extremely appreciated. Please come help raise awareness for Alexander Disease and Brittany's struggle against it!
$5.00 per person
Guests are also welcome to come the day of the event and purchase tickets at the door!
RSVP on the Facebook page and show your support!
Raffles and a bake sale are planned!
Anyone with information, ideas, suggestions and personal contacts at local businesses that may want to be involved with a donation for the fundraiser ( monetary or raffle item ) are welcome and extremely appreciated. Please come help raise awareness for Alexander Disease and Brittany's struggle against it!
We are seeking donations of
BAKED GOODS- local bakeries as well as individuals are welcome!
RAFFLE ITEMS - can literally be anything! homemade goods to giftcards or items
VOLUNTEERS -aged 16 and over for the flapjack breakfast day
If you cannot come to the event but would still like to help, please consider donating.To do so
If you cannot come to the event but would still like to help, please consider donating.To do so
for T.E.A.M Owen's fundraise.com site
also PLEASE take a moment and go to the T.E.A.M Owen Facebook page to learn about their efforts for the families of ill children and those that have lost their child.It's an amazing site created by Hiedi Hilton in honor of Owen, her two month old son who passed away in November 2010. T.E.A.M Owen is responsible for orchestrating this amazing fundraising effort.
For donation offerings, tickets, and information
Contact :
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